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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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It must have been a comic scene
Again, I ask Anne to correct me where I err, but I want to be sure everyone understands what happened over the last few days.
Anne, between working like a fiend trying to find the Cure and having her own nasty case of PD, ran into trouble a week ago and ended up in the hospital in France to get her meds regulated. Because of her background (surgeon) and family (doctors everywhere) she had a good and respected team to call on. Some of the best in the country in fact. Her family's medical tradition is reflected in the careful language that she started her report with.
While there she had the opportunity to demonstrate the banding and she really blew some minds but others couldn't quite understand the import of what they were seeing. Being allowed to sink into a very deep "off" state, she persuaded an intern to help her apply the wraps and immediately was markedly better. I'm sure word got around.
The next morning she had to have her morning cigarette and found herself trapped in "off" far from her room. A nurse offered help and Anne asked for a pair of support hose. Finally getting them on she was elated to find that she had control again, including that of her arms! In her joy and showing the nurse the effect, she dance a Can-Can for her!
She didn't notice, but a young neurologist had come up from behind while all this was going on. It blew his mind and word got around. Her doctors/friends just don't know what to make of it, but they were able to document the effect as being real in controlled conditions. It is a great start for something that was unknown a month ago.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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