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Old 09-06-2017, 10:13 AM
SLee SLee is offline
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Join Date: Aug 2017
Location: Central NY
Posts: 15
5 yr Member
SLee SLee is offline
Junior Member
 
Join Date: Aug 2017
Location: Central NY
Posts: 15
5 yr Member
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He said it would take about 4 weeks before I can get in for the test. They will call me with the appointment. Apparently the doctor (not a tech) who does this specific EMG is very good and empathetic as well.

In the meantime, I should have the bloodwork back from Mayo (just the MUSK) and when we have all the info back we can take it from there. The same lab will repeat the ACHR tests. In the meantime I do have a tentative dx so that's a start. I'm not on steroids or mestinon but he took me off the magnesium oxide he had me on for migraine. He doesn't want me off the clonazepam until the blood test results come back as they really help with my vertigo attacks.

It absolutely helped that I'd gotten pics of my eyes when they drift and selfies of my ptosis in one and both eyes at different times of the day. My eye acted up during the exam too. They've never been able to get the reaction during an exam.

He does feel it's MG but we need to know if its ocular or generalized.
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"Thanks for this!" says:
AnnieB3 (09-08-2017)