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Old 09-08-2017, 06:05 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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What was your O2?

I wouldn't trust the result from a lab that was having instrumentation issues! Blood needs to be evaluated fairly quickly!

Using the disability carts was a big defeat for me too! But I'm so grateful for them. I couldn't walk through a big store.

Mestinon is great, but be cautious of think you're superwoman now! Mestinon only gives a person more acetylcholine (ACh) by blocking the enzyme acetylcholinesterase (AChE). That enzyme cleans up ACh once the job of making muscles strong is done.

You should be off of Mestinon before an EMGs. And any caffeine. Are you on any other drugs?

Second opinions don't hurt (though they might hurt insurance!). You may want to keep the Mayo appt. on the books. But if you drive there, someone else should be doing the driving! If you have MG, driving can tank a person very quickly. More muscle groups are used, and all at once. And we can become so worn out that driving is similar to driving drunk, even while taking Mestinon.

Take it easy until you see someone. And if you become worse, go to the ER!

Annie
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