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Old 09-10-2017, 02:37 PM
ganels ganels is offline
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Join Date: Sep 2017
Posts: 1
5 yr Member
ganels ganels is offline
Newly Joined
 
Join Date: Sep 2017
Posts: 1
5 yr Member
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Quote:
Originally Posted by LovesTerriers View Post
Happy Holidays and Greetings to all.

I was just wondering if anyone here has had the chance to try the new BurstDR- SCS from St. Jude's. It was approved in October of 2016. I have CRPS of my left leg, abdomen and spine. I had always been hesitant to try out the SCS devices because I cannot tolerate any type of tingling/vibration sensations (it makes me nauseous). The new BurstDR cannot be felt. I just completed the trial and I believe it was a HUGE success. I was shocked and surprised at the outcome. I haven't been able to move my toes in years, walk without a cane/crutches, nor could tolerate anyone/thing touching my CRPS areas. With this device, I was able to function almost normally....almost 80%...and I have a torn labrum in my CRPS hip, which needs surgery. I can just imagine what it will be like after I have my hip repaired. My doctor even placed the leads to cover my rib cage pain. It was simply amazing.

Now the hard part, waiting for the actual surgery. And they are trying to determine what will be a better option for me...the leads or the paddles. I would prefer the paddles, as they are more stable and use less energy, but my PM was unsure if they could get the paddles maneuvered to cover my ribs. I am now in the wait and see period and lots of praying period.

I am very hopeful now about my future, as all other treatments, including almost 2 years of ketamine infusions and 7 day inpatient infusion, have failed.

I would like to hear if others have had luck with the BurstDR SCS.

Laurie
I am having the Prodigy MRI SCS system (Burst/Tonic)from St Jude put in on the 19th of Sept. My trial also worked 90% effective. I will be getting the leads and not the paddles. My PM doc said that they will be sutured in place but will take a total of 3 months to completely heal in place and it will take a car accident to dislodge them once healed. I am sure that you have now had the permanent one put in. Did you end up with the St Jude's? How is yours doing if you had yours put in? I've had decompression and spinal fusion about 5 years ago. Have had lower back pain and left leg pain for years. I don't like being on meds for a long period of time and nothing else works except the trial SCS.
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"Thanks for this!" says:
ger715 (09-12-2017), PamelaJune (09-10-2017)