Oh my goodness, my post got deleted when I went to send it
I don't have time to retype, but thank so much Annie for all of this information and taking the time to help me. You are an angel. You have been very helpful during this time when I feel so overwhelmed. Yes, my weakness has always been fatiguable, Mestinon and rest help. I did the ice pack test weeks ago and it improved my ptosis. And no, the Xanax and Klonopin never helped my shortness of breath. I know it is real, I am just overwhelmed.
Lbee