I just came across this old thread while looking for something else.

Five years on and I feel qualified to enter my own thread. I'm now 12 years post-diagnosis and what with possible symptoms predating that by many years (by 10 years for a tremor in my right hand little finger and by, perhaps, 40 years for poor posture and a masked face - as a kid I was often told to "cheer up" even when I was happy).

I can walk almost normally. A major reason for this is, I believe, aiming to walk 5 miles per day.

My tremor is bad when I'm "off". It doesn't seem to have got any worse over the last 5 years.

I have no dyskinesia. I believe that this is due to my drug regimen including long half-life drugs which means that there's less variability in my dopamine and agonist levels. (A probable cause of dyskinesia is the variability of dopamine caused by taking levodopa based drugs every few hours.) I also think that this has been helped by my taking my drugs on an as needed basis (or to be more precise to take them in such a way that they come on stream when they are required), rather than on a regular schedule. The drugs I take each day now are:
Drug, Dose (mg), Levodopa equivalent dose (mg)
Stalevo, 5 x 75, 5 x 100 = 500
Ropinirol CR, 8, 160
Rasagiline, 1, 100
Total, LEDD = 760mg.

I'm now beginning to get troublesome dystonia: a stoop, a lean to the left, and a rotation.

My worst symptom is constipation.

I notice that my ability to remember things is declining. Not in a big way. But, for instance, I can't remember the names of my local football team.

Finally, but probably the most important, I socialise a lot.

All in all, I'm as happy as I've ever been.

John