hi i'm AK,

last 10 months have been tragically comedic.

1. first sign of MG appeared in Mar 2016, ptosis of left eye, fatigue wo cause. Usually went away n no pain so i didn't do anything about it.

2. secondly in July 2016 went to Mayo bc i felt like i was getting weaker, despite regularly exercising and improved diet. if i pushed myself breathing was incredibly difficult, more than being out of shape. i was actually doing less training reps than when i iniated training.

3. thirdly Aug 2016.i felt like i wasn't seeing as well.

4. double vision, blurriness, began in Oct 2016. ophthalmologist only found mild near sightedness n glasses were for driving at night.

5. Feb 2017 fatiguable weakness cont'd n vision loss, 2nd opinion on eyes gave a more complete pic for my eyes, homonynymous hemaniopsia =85% chance brain tumor or lesion affecting optic nerve.

6. brain MRI Mar 2017 - follow up with neurologist in May my brain is fine other than i'm a little left of center (mr shakespeare too!)

7. Jun 14, 2017 follow up with ophthalmologist states 2 things clearly 1. he can't improve on my vision as it continues to deteriorate with glasses. 2. opines best guess is MG.

8. as i inform myself about MG it fits 3things i couldn't connect.
A. General feeling of getting weaker which was y i went to Mayo initially.
B. Explained my declining vision.
C. Explained what i now understand as MG crisis
i experienced on two occasions.
1. Feb 2017 after 30 min warm up for a TT tournament i sat for 30 n during that @test" i collapsed from weakness, labored breathing felt like a 100 lb body suit was put on me.
2. Apr 2017 it repeated in a similar fashion, more intense, i should have went to ER, had no idea what was happening. i feel lucky to have survived.

i have found ice helps immensely if i struggle to breathe, a bag of ice on the chest will keep the diagphragm from overheating n the collagen won't break down.

more to the story later. peace!