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Old 09-30-2017, 09:37 AM
bddouglas bddouglas is offline
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Join Date: Jul 2014
Posts: 141
8 yr Member
bddouglas bddouglas is offline
Member
 
Join Date: Jul 2014
Posts: 141
8 yr Member
Default I have NO Choice but to try Ocrevus

I spoke with my Neuro on August 15. He explains that there has been no change in my MRI since 2016. I asked him if there is no change, how can my symptoms be getting worse? Well, this is how he explained it to me...I have multiple active lesions bilaterly in my brain and a larger lesion on the Pons. Of course, I interrupted and asked, How many is multiple? and What and where is this Pons located? He continued, Multiple is way too many as far as I am concerned and the Pons is located on the brainstem.

He explained to me that since we have tried 4 MDT's and I was unable to tolerate any of the 4, we have no choice but to try Ocrevus, is that okay with me? I trust my Neuro completely. I hope it works, I am finally scheduled for the first half of the first infusion on October 4th. Fingers crossed that I tolerate this stuff, it is a Hail Mary for me...all or nothing!
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