I can understand your frustration with the neurologists. I don't know enough about neuroanatomy and interpretation of MRI scans to say anything helpful.

You could think about posting in the TBI/PCS forum (https://www.neurotalk.org/forum92/). It is very active so I am sure that you will get helpful thoughts from other members there.

As far as your clotting disorder is concerned, posting in the General Health Conditions forum (https://www.neurotalk.org/forum2/) might be helpful as well.