LinJan,

I also have tos and live in Monmouth County, NJ. I believe that we probably go to the same neurologist in Tinton Falls (Dr. Pertchik). I know that Dr. Togut said no PT or exercises, but if you just want to go to PT for heat and massage then try Preferred Care Physical Therapy in Middletown. The PT is Michelle Vandel and when I went to her for tos and other ailments she didn't have me do many exercises that flared me. I have the feeling that the therapist who made you worse is the same one who made me worse in 2004. I ended up quitting after she made me do alot of above the shoulder exercises with therabands and then labelled me exercise intolerant. Good luck.
Jeanne