Junior Member
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Join Date: Mar 2015
Location: Connecticut
Posts: 14
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Junior Member
Join Date: Mar 2015
Location: Connecticut
Posts: 14
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Hi all. I am refractory too and just had 3 of 4 infusions of Rituxan. makes me really sick for a couple of days, but I am feeling serious relief from my symptoms.
I have had MG for at least 25 years, and was actually treated for Lyme disease at one point.
Finally, a neurologist found a 2.2 pound thymoma crushing my left lung and laying against my heart. I felt pretty bad all the time. After the surgery though, everything went to hell and my condition became severely worse over the next several months. It's been a slow battle of ineffective drugs, but this Rituxan seems to be working for now. I just don't know how long it will last.
Good luck to all of you!
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