Quote:
Originally Posted by en bloc
The best treatment for Sjogren's related neuropathy is IVIG. The dose for IVIG used for neuropathy is 3 times higher than that for an immune deficiency and more effective in treating the neuro complications.
With your positive lip biopsy, you should qualify for IVIG.
I'm so glad you finally got the lip biopsy done and now have an answer to the cause of your neuropathy. Now to start treating it more effectively.
Please keep us posted on your upcoming appts and new treatment plan.
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En Bloc, there is no way I will be able to access ivig on the nhs, no way on earth. Despite the fact I am so very very unwell. I have been told I won't be able to access rituximab either because I'm seronegative.
I recall you took Cellcept at one time en bloc. That has been suggested to me. Can you remind me how it helped if it did help your neuropathy? I recall you had to stop it.
Another offer was to have enbrel. Ibgave bit read anywhere that enbrel cam help. They are saying this as my original AI illness is ank spondylitis and Enbrel is used for that