Quote:
Originally Posted by Suffolkchris
Peggy
Are candidates for DBS made aware of this before hand?
Do you know roughly what percentage fall into this category?
At 3 years since dx I am hoping that DBS is a long way off or that other options will appear before I reach that point. But like Teresa & yourself I just cannot believe that Sham surgery happens!!
Chris
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it does NOT occur with DBS here. There are no double blind studies going on that I am aware of in the USA.
Can't you opt out of any studies and get the real thing??
DBS is the ONLY treatment we have that is effective and AVAILABLE at this time.
It is unfortunate that double blind studies appear to necessary to prove the efficacy of new treatments.
Charlie