Hi Joanna,
I've been MIA for a while on Neurotalk, busy fighting another cause, but saw your post. Well done for battling for the diagnosis.
Just a quick link that might help you get treatment. I thought of Humira as some RA patients also with Sjogrens (my brother included) have found some improvement with the Sjogrens when taking Humira. Here's a link to a UK research group that might be able to tell you more:
Sjögren's Registry - Welcome
All the best with the NHS.
Quote:
Originally Posted by JoannaP79
I have just discovered today that my lip biopsy confirms that I do have sjogrens! It took quite a while to get these results! What on earth are the options for this? My neuro symptoms are very severe now. I have spent so long trying to figure out what i had and kept getting taken off track.
Those with sjogrens, please tell me what is working for you. My main issues are neurological as opposed to the other stuff.
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