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Old 10-28-2017, 06:47 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Help

Hi, James. Welcome to the forum!

First, surgery or any other bodily stressor can bring on MG in some people. That can be enough to push the immune system into disease. There's no such thing as coincidence. The body reacts to any trauma it experiences. Sometimes, the immune system can handle what is being thrown at it, sometimes not. A few months after a surgery, I acquired celiac disease. Not a coincidence either.

You really need to be seen very soon (possibly the ER). If this is not MG, this could be signs of a clot (which can happen after surgery) or a stroke. If this is MG, you sound as though you are not doing well. If you become so weak that you can't walk, talk, breathe, or swallow, then that is the time for a 911 call.

You can also have more than one thing going on. Has anyone done a D-dimer to check for signs of a clot? Although that can also be elevated after surgery.

An ER doc or a neuro can do the AChR (acetylcholine receptor) antibody panel (binding and modulating antibodies). They can do a clinical exam to test your muscle strength. They can do an O2 reading while sitting and moving.

MG can come on slowly or quickly or anywhere in between! One of the first signs of MG can be a need to nap. That can also be a sign of a B12 deficiency.

You can see a neuro-ophthalmologist to have them evaluate the double vision. Does the DV go away when you close one eye? That is called binocular DV, which is typical of MG. Monocular DV, which doesn't go away with closing one eye, has other causes.

You should find an MG expert. Not all neurologists, or other doctors, know much about MG. And a neurologist can evaluate you for any other issues related to the DV if you don't have MG.

How are you feeling right now? How is your breathing?

You need more doctoring. If you become worse this weekend, you need to be seen in an ER. Dialing 911 is very important if you are really weak. I hope you'll find answers soon!

Annie
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