Hi wf,

Sorry to hear of your bad experience with the neuro. Unfortunately, it's all too common.

I experienced doctors disagreeing on things, and they are never hesitant to correct things on records. My neuro diagnosed me at one point with thoracic outlet syndrome, and put in my record. The spinal specialist disagreed, and removed it. When I went back to the neuro, he put it back in. After he retired, his replacement took it back out.

If your neuro is in a network, any other doctor in the network can adjust diagnoses in your electronic records. His comments/notes will remain and future doctors can see them, but I've found many will make their own decisions and not take them to heart.

I should mention that when I saw a gastro at some point after my neuropathy set in, the first thing he did was test me for a "silent" form of Celiac since he said that can cause neuropathy.

janie