Mine started in my left ankle and is now in the whole leg, both arms including both hands, my torso, and my neck...and in my abdomen after my Csection when I gave birth 3 years ago. When the spread first started to happen, I had pretty much every test known to man to check for what else it could be...but deep down I knew it was spread even if I didn't really want to admit it. Once I accepted it and my doctors ruled out everything else and started treating it, the spreading basically stopped and I'm just short of full body and hoping to avoid any more spread. Some may say that I'm extra cautious with certain things...but if any of those precautions help avoid spread then totally worth it.