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Old 11-04-2017, 03:33 PM
chantelle<3 chantelle<3 is offline
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Join Date: Nov 2017
Location: Manchester, England
Posts: 4
5 yr Member
chantelle<3 chantelle<3 is offline
Newly Joined
 
Join Date: Nov 2017
Location: Manchester, England
Posts: 4
5 yr Member
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Hi sorry to hear about your daughter feeling that way, I am 26 and have chiari malformation and my symptoms are much the same as you daughter's with variations here and there. Although I have numbness in my hands at time and this condition can make life hard for me also with having youngsters too, so my neurologist has placed me on the waiting list for decompressive surgery. I really hope you get to the bottom of what is causing these health issues for your daughter, but I have found a massive challenge in having a chiari is not just the malformation itself but the awareness of it... Most doctors I tell about it have no idea what it actually is and the symptoms can be mistaken for many different things so it is hard to diagnose without the MRI.

Good luck and best wishes,
Chantelle
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