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Old 11-05-2017, 05:45 PM
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
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CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
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Quote:
Originally Posted by Becca71 View Post
WOW, I'm so sorry you are suffering so much. Have you read about the newer treatments? The neridonate (sp) is showing hugely positive results in many patients. I don't know if that is something you can get down there. What about Ketamine?
My doc just put me on buprenorphine which, along with the lamictal and cymbalta, is keeping things more reasonable (though I hear you on the breeze from AC/fan ouch!). Most docs don't do buprenorphine, none of my previous docs even MENTIONED it.
Becca, I am on Neurontin (gabapentin) & buprenorphine (both patches and sublingual tablets for breakthrough pain/pain peaks).

They tried Fentanyl pain patches on me first, but I had horrible side-effects, and in Belgium there is only one other pain patch on the market, so... the choice was quite obvious. And these do well with me. I have been on them since 2004, still the same dosage and everything.
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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