Thread: Raynaud’s secondary to SFN - is cold a trigger or just a new stage in the SFN?
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Old 11-08-2017, 07:47 PM
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
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Originally Posted by Healthgirl View Post
I also get the raynauds stuff from this sfn. It is part of the temperature dysregulation that comes with autonomic nerve damaged. The nerves don't allow the body to cool it self or stay warm. I can't deal with temps out of the 68-78 F range. With the fall here in New York, I have to wear two sweatshirts and a carry around a hot rice pack with me in the house.
Thanks Healthgirl. Do you get colour changes such as Livedo Riticularis on your feet when exposed to air? Mine has become very pronounced - my very fair feet almost turn blue black in places now when I’m changing for the shower or bath. I’m feeling more confident that all this represents a slow worsening of my SFN from painful to numb. And I agree about the autonomic nervous system being kaput!
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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