Quote:
Originally Posted by catra121
My appointment yesterday to get the leads removed from the trial went pretty well. They were running WAY behind...doctor didn't come into the room until 2 hours after my scheduled appointment time (this wasn't my regular doctor but the doctor that was just there that day since it's not my doctor's normal day but the leads had to come out). I did jump off about 6 inches off the table when they pulled one of the leads due to a shock in the back of my left thigh...that was weird and I felt a sort of buzzing sensation for a few hours after but it seems gone now. Pulling the tape off...awful.
One unexpected thing...I have a burn where the one cord was and where the rectangular unit was taped to my back (not where the tape was...but where these things were touching my skin). They said they are friction burns...so not from heat off the unit but more from the rubbing against my skin for 10 days. So those spots are a extra tender today but not too bad. The doctor didn't seem at all surprised or concerned so I am guessing this is normal...but I was surprised.
The rep from St. Jude's went over a few more details about the permanent implant including that I will be getting a non-rechargeable unit...which I am happy about because I am so sensitive to the touch that I was worried about how I would do with a rechargeable unit because I know some people have issues with sensitivity due to the charging. The unit will be placed on the right side of my back.
Very excited...less than 4 weeks until my surgery and...hopefully...a treatment that provides me with consistent GOOD relief!
|
Catra, great that your trial went well. A non- rechargeable unit sounds preferable as recharging is a nuisance and I was always worried about forgetting to recharge and damaging the battery. I had a scs medtronic unit for 8 yrs. I had it taken out because eventually my brain had adapted and I wasn't getting the benefit any more. They did offer me a trial of a high frequency unit (different brain input) but I had major issues with battery placement. So they are putting the battery in your back? I'm assuming that's you're upper buttock. I had mine there, partly in case I had a 2nd child and also because I am small and I was advised it is easier for sitting in short people so it doesn't hit the ribs. With me it did eventually cause some pain/pressure care issues with battery migration/not enough fat covering it but batteries are a bit smaller now.There are pros and cons wherever you put the battery. I can't believe they took the leads out with you awake especially as you have CRPS! You should be at least given that medication where you can't remember anything later, is it conscious sedation or twilight sedation, relaxant- something!
Good luck with the next stage, Booklover