It's just ugh. My view is we are gamblers. Lucky, on the one hand that we have medical options to repair us, but unlucky that those same options might easily advance our CRPS. It's high anxiety all the time, but we must persevere, and go where few have gone before. Body maintenance is just not the same for us as it is for other people!

I never in my wildest thoughts could have imagined going through brain surgery, but I did! Nor having repeat cerebral angiograms. OMG, I will need them for the rest of my life, endless dread.

It is hard not to focus on these set backs when pain is your constant companion, literally reminding you every second that things aren't quite right. It is tiring and it is awful, but as my daughters remind me "It beats the alternative."