Thanks Mark. Trying to figure out how to private message you, will message my location. My mom looked into some neuro rehab in LA on my behalf, but ones like UCLA won’t take me, because I’m PCS and not TBI... insurance won’t pay either.

Hit back of my head on laundry machine February 2017. Only symptoms were minor dizziness and nausea. Felt completely symptom free after 2 weeks, and even started doing better in college and exercising more. Within 4 months, hit the front of my head on a metal bar at the gym June 2017. Within one week, and over the course of 2-6 weeks, developed varying symptoms and diagnosed PCS. Symptoms have gotten increasingly worse every month, in particular after car rides/my few doctor visits.

It should be noted that as a general timeline of events, many symptoms including all my visual ones like hallucinations started within one week of my accident. Sleep issues such as insomnia and sleep paralysis started around the second to third week. I was sleeping 8 hours a night up until I suddenly couldn’t sleep for several days in a row. Then got on Ambien, and realized I literally stopped initiating sleep unless I took it.

Physical: various headaches (most commonly throbbing at back of my head, becomes more painful if the back of my head is laying against anything such as a pillow), extreme light sensitivity, extreme noise sensitivity, ringing in the ears that at times gets so loud it’s difficult to think in my head, palpitations, hard time balancing, dizziness (laying and sitting, gets worse as I walk), nausea, widespread throbbing pain throughout my body (stomach, back, legs, arms, finger tips), “shaking” or “vibrating” sensations throughout my body

Visual: 24/7 cartoon like visual hallucinations eyes open and closed, 24/7 visual snow eyes open and closed, 24/7 strobe-like flashing lights eyes open and closed, eye pain wrapped around my eye (particularly right eye), right eye feels “used more”, intermittent blurriness, visual distortions such as flat lines seeming wavy, hard time focusing on objects, impossible to make eye contact (including with myself when I look in mirrors)

Cognitive: concentration issues, memory issues, brain fog, “uncontrollable” nostalgia (these are not PTSD like flashbacks, I just keep remembering memories from throughout my life, feel like I have no control)

Psychiatric: panic attacks (small ones a few times a day, big ones every few days), anxiety, derealization, depersonalization, “uncontrollable” conversations to myself In my head (this only happens if I feel like I’m not being distracted, such as when I close my eyes while laying down. I will either say meaningless phrases or have full-blown A-B conversations with myself that I often don’t realize is happening. When I catch myself doing it, I feel a little panicky), constant counting numbers in my head, “minor depression” such as crying fits and lack of interest (I say minor because this only happens when I haven’t been sleeping well for a few days in a row, etc. perhaps a normal reaction.)

Sleep: insomnia, extreme fragmentation/awakenings, hypnagogic sleep paralysis