I went out of state to get evaluated by a specialist who focussed on nerve problems. He did an EMG of arms and legs which were normal and said afterwards that there was no point in doing any other testing (including SFN biopsy) as he didn't see what it would accomplish. When I brought up that I had celiac disease, he questioned the diagnosis, and when I said it was confirmed in 2002 with biopsy and blood work, and said I had concern as to whether the symptoms were from celiac, he said neurological symptoms in celiac were "controversial" and the conversation ended there. At that point I did not have the energy to disagree with him, and just left when the appointment was done. I am feeling very discouraged right now, especially since visual problems related to optic neuritis are worse which are my primary concern. Every time I go to optic neurologist in my home state, he tells me in 3 months I'll improve, in 3 months I don't, then get another episode and vision gets worse, go back to him, and the same repeats.