View Single Post
Old 12-15-2017, 12:52 PM
sheepslinky sheepslinky is offline
Newly Joined
 
Join Date: Dec 2017
Posts: 4
5 yr Member
sheepslinky sheepslinky is offline
Newly Joined
 
Join Date: Dec 2017
Posts: 4
5 yr Member
Default

Thank you. I've learned to view my long journey through TOS, and a changing body with both comfortable and uncomfortable sensations as just that, a journey. As I have now decided to step down from my job, apply for disability insurance, and prepare for the next chapter it's helpful to hear advice from other TOS folks.

I have found that I needed to make ample time for healing, even before the official diagnosis was confirmed. I've found that, if I remain active in PT, Spoonie Yoga, Walks, Volunteering, Hobbies, etc I feel greater relief. For so long, it was just difficult to commit to making time for these things, even though they are often hard to do when my body barely creaks out of bed in the morning.

Prior to surgery in October, I was unable to drop my shoulders to neutral, as my scalenes had tightened and rolled my body forward, damaging and straining the muscles of my upper back. I was unable to turn or tilt my head in addition to the many other symptoms of TOS. Now I can tilt my head to the right -- it's a small thing, but feels so good.

Anyway, I discussed all of this with my Dr, and he is in agreement. He also administered some much needed trigger point injections and refilled my muscle relaxant Rx.

It is hard to keep expectations in line with the real pace and progression of healing.

Thanks
sheepslinky is offline   Reply With QuoteReply With Quote