Thread: Severe pain
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Old 07-18-2007, 10:59 PM
Stella Marie Stella Marie is offline
New Member
 
Join Date: Feb 2007
Posts: 2
15 yr Member
Stella Marie Stella Marie is offline
New Member
 
Join Date: Feb 2007
Posts: 2
15 yr Member
Default There is help out there for pain.

Warning..I am too lazy to proof read this..so please read past the typos.

I am in severe pain 24/7. My recommendation to you, if you have not already done so is to find a top-notch pain management specialist. I am not talking about someone from a local hospital, but rather a well-credentialed one from the nearest teaching institution. You did not mention the source of your pain. I have a neurodegenerative disease and as a result, I have two types of pain. One I have what they call in laymen’s terms – real pain that radiates from muscle spasms that I get in several major muscle groups from dsytonia. Because of the nature of my disease, I also suffer from neuropathic pain. This is pain that you actually feel – but there is no real injury of area of damage. Your brain is just sending out a pain signal that feels exactly like you are injured.

I have a intrathecal pump the delivers medication directly to my spine. This way I need less medication and what I take is more effective because it does not have to cross the blood brain barrier. With the pump, you only need to take 1/100th of the oral amount you were originally taking.

I also have a Spinal Cord Stimulator, this is a device implanted in your abdomen just about where your wait is. My stimulation has two leads that go up to my spine and deliver a mild electrical impulse the interrupts the one that your body is trying to send up to your brain. I would say that the stimulator was also to cup me pain by 50%. I have a hand held remote that allows me to increase of decrease the electrical signal. The signal feels like the feeling you get when you sit in one of those massage chairs. I find it to be a pleasant vibration.

I also take oral medication. For neuropathic pain, I take Lyrica. I have found that fentanyl is the best narcotic for neuropathic pain. When I have problems I use the fentanyl patch and in emergency break thru situations I use either Actiq or Fentora.

There is no need to be in the pain you describe. You need to find a good doctor the specializes in pain,
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