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Member
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Join Date: Aug 2010
Location: South Carolina
Posts: 714
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Member
Join Date: Aug 2010
Location: South Carolina
Posts: 714
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Welcome
I was hoping someone would answer. Anyway this was how I started out, just double vision. All antibody test were negative. My neuro-opto put me on a large dose of Prednisone which cleared me of double vision. They tested my antibodies a few months later and I was positive. This was all in 2007. They tapered me off prednisone. I now take 20mg a day. They tried Imuran but it reall made me sick so I then went on Cellcept. In between I had many doses of IVIG. There is so much they don't know about this disease. I am now fighting various cancers which they blame on the Cellcept. They are going to try something new in Jan.
As for your sleep problem I can't help you. I would guess when they start tapering your Prednison that will go away. I wish you the very best.
Mike
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