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Originally Posted by LizaJane
Do you feel brain fogged? Maybe you could get them to do a PET or SPECT, and if it's abnormal, they'd count that as cns involvement?
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Thanks. I’ve had several brain MRIs show white matter but they say it’s existing damage not ongoing inflammation. A lumbar puncture showed paired o bands but this is too non specific. I’ve also had full body CT show nothing untoward apart from lumbar degeneration. I will ask about further scans but they are reviewing my case just now so we will see.