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Old 12-21-2017, 12:35 PM
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Join Date: Aug 2010
Location: South Carolina
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pingpongman pingpongman is offline
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Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
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Cellcept takes 6-8 months to start working. Mestinon never did much for me. I still take it. Keep in mind these drugs affect each of us differently thus "snowflake disease".
I had to go to Cellcept because Imuran made me so sick.
I was on Cellcept about 5 years before the cancers started. I had lung and skin cancers. Lung cancer is gone. Just finished radiation for 5 skin cancers. I have had about 15 skin cancers. I had a squam on my head that was removed by cutting out. The hole was about the size of a silver dollar. It upset my MG so bad I was in Hosp for 8 days. My MG responds very bad to body invasion. Also keep in mind a lot of deadning drugs Drs like to use upsets MG. This includes dentist.
As for sleep. I have good nights and bad nights. Take a nap mid-day because I really tire out in about 3-4 hours.
Mike
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AnnieB3 (01-08-2018)