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Old 12-21-2017, 02:12 PM
stillHoping stillHoping is offline
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Join Date: May 2015
Posts: 154
8 yr Member
stillHoping stillHoping is offline
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Join Date: May 2015
Posts: 154
8 yr Member
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Maybe it would be easier to get approval (or pay) for Rituximab than IVIG.
Here the cost of a single Rituximab and IVIG infusions are about the same, but the frequency of Rituximab infusions is lower, about 16 IVIG vs 2-4 Rituximab in the first year.
I read there is a generic version of Rituximab in India that is much cheaper.

Quote:
Originally Posted by MAT52 View Post
but here in UK (I’m in Scotland) IViG and other big gun biologics such as Rituxan would only be available to me if my CNS were to become involved. I’m on the maximum dose of Cellcept but it appears not to be working and my case is up for review. I’ve asked numerous times about IViG but they say it’s too expensive on NHS and wouldn’t be appropriate anyway since they think the SFN of Sjögren’s is generally self limiting. Someone clearly forgot to tell mine to limit itself as every part of me is now turning increasingly numb and I’m losing balance and a liability crossing roads etc!
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