Quote:
Originally Posted by Tryguy
Hi, I spent a year attempting the Hinz protocol to no avail, and eventually surrendered to the C/L (Sinamet) treatment. However, 3-4 pills of 25/100 per day did little. SO.. I added some left over Mucuna from Hinz with each C/L where I have reached at least a functional state and can play my guitar again after 2-3 years. I still supplement with B6 to help keep the Dyskinesia monster at bay. (I have never had any)
I am still fine tuning and looking to eliminate the C/L and go straight Carbidopa + Mucuna only. Are there are any other PD Warrior renegades out there trying anything like this?
Btw, I am an exerciser, attitude maven, curb walker, and 58 yr old dad of two. More gait dominant, no resting tremor, diagnosed 7 years now.
Thanks in advance!
AB aka Tryguy
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what happens if you take more than 400mg C/L? keep in mind when l-dopa is delivered directly to the small intestine (duodopa) more l-dopa is given than when delivered orally and those patients have less dyskinesias, and it was observed that when duodopa is stopped, that benefit lasts for a few weeks. so that supports the theory that dyskinesias are increased by fluctuating concentrations of l-dopa, not by increasing l-dopa.
sounds like you are doing well on your regime. just posting my opinion that you shouldn't fear going over 400mg. and how do you know if there is a possible downside to taking mucana for years?
trying different C/L generics to see if one works better for you might be worth it and have as much benefit as using mucana, or not
you also might want to investigate natural mao-b and comt inhibitors, azilect/selegilene are mao-b inhibitors and entacapone is a comt inhibitor.
i will post links, can't find them right now.