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Old 01-05-2018, 01:16 PM
Lodaloda Lodaloda is offline
Junior Member
 
Join Date: Oct 2017
Posts: 7
5 yr Member
Lodaloda Lodaloda is offline
Junior Member
 
Join Date: Oct 2017
Posts: 7
5 yr Member
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Quote:
Originally Posted by johnt View Post
Lodaloda,

Welcome to the forum.

You say that your mother doesn't respond very well to levodopa. What doses has she tried? Has she been careful to take her drugs away from food, especially protein?

You say that she does not have ons and offs. This suggests to me that she is still producing dopamine, but in insufficient quantities to be "normal". A good sign of this is whether she wakes up feeling good.

John
Hello, finally following up here. Mom takes three 25/200 CL a day. I am thinking maybe she's under-medicated?

She tried her first Amantadine today and is experience pretty bad drowsiness/fogginess. I think she had the same reaction to another agonist a year or two ago, I can't remember which. So far no positive effect on her tremor.

Any advice re: the levodopa responsiveness (or lack thereof) would be appreciated. Also do the agonists take time to work, and does the drowsiness side effect wear off for some people?

Trying to gather our thoughts and questions before she sees her neuro next week.

Thank you!
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