Hi Kiwi33,

Thank you for your response! My partner doesn't want to talk about it much, and they rather I didn't discuss it with friends either so I feel alone and in the dark a lot of the time.

Yes I don't think my partner has seen good/encouraging/positive doctors and
although they don't want to know more about their condition, I certainly do because I can't help thinking there might be things that could help them. Maybe massage or physio exercice... not sure of course.

Thank you again Would love to get input from other members of the community