Senior Member
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Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
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Senior Member
Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
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Dave,
Welcome to the forum.
I agree with your comment 'pragmatic "experimentation" with diet-meds-etc. is often superior to following a rigid schedule provided by a "specialist"'.
Much to the annoyance of my medics, who want me to follow a 3 hour dosing schedule, I prefer to take my meds when I feel that I need them, or more precisely so that they will kick-in in time to stop me going "off".
We could get more out of our experimentation if we had hard data, e.g."off" duration, tap test, levodopa content etc..
John
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Born 1955. Diagnosed PD 2005.
Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg
Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg
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