Member
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Join Date: May 2007
Posts: 146
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Member
Join Date: May 2007
Posts: 146
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Question about autoimmune neuropatyh?
Hi everybody! I posted a while ago on this forum and i have returned because i can't get rid of some doubts.
I have a few questions about autoimmune neuropathies. Can they go into complete remission?? My doctor says mine can, but all i have read points to a no. So am i just being stuborn and should i believe my doctor?
My doctor had me take IVIG about two months ago.When he first talked about this treatment he said i would need an IVIG infussion every 3 months for about a year. Now he tells me it all depends on how i feel, and he said that if i feel symptoms are coming back then i should get another round of IVIG. The problem is that after the IVIG was administered i have been feeling some different sensations, like vibrations, but very located along the nerve, and some tingling in my feet. I also get cramps everytime i stretch my feet, also i feel some stifness along my nerves once in a while. So i really don't know what to think. Doctor says these are healing sensations. And i beleive so, but some sensations are similar to the ones i had before IVIG, so should i interpret this as my nerves are still being attacked?. Do you think i should get an other IVIG infussion?? Is there a mmore objective way, other than what i feel, to find out if my nerves are still being attacked??
An other doubt i have is: How can i know if my immune system is back to normal?
Currently i am on prednisone, imuran and novotiral for a thyroid problem i have. I was reading some people's posts regarding to magnesium. I would like to give it a try, but do you think that if i go on magnesium it will be too much for my body?? Should i tell my doctor or i should just take it without telling him. I have realized he gets sort of upset whenever i tell him "i read on internet that....", so i don't really would like to tell him again, "i read about magnesium..." What do you think???
Well thank you guys. I will try to be around more often
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