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Old 01-14-2018, 12:46 AM
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Join Date: Aug 2010
Location: South Carolina
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pingpongman pingpongman is offline
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Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
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Naps are good. I take one every day. Best advice I can give you is listen to your brain. Don't push it, if you think you are tired well you are. Avoid heat also. I know it's winter but just store this away. My IVIG treatments go very nicely however some people have trouble. IVIG is just a slow drip IV bag. Mine take about 3 hours. I go to a infusion center. They provide snacks and lunch if you are there during lunch time. They also provide TV, movies ect. Be picky about your treatment. Don't accept poor conditions, our lives are tough enough.

One thing that bothers me as much as heat is stress. Holidays are really tough. My wife is a angel she knows more about MG than I do. She goes in to all my Dr visits and I suggest you find someone to go with you.
hang in there
Mike
PS: If you don't like a doctor find another. Some will actually abuse you. You will eventually find a Dr you trust
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"Thanks for this!" says:
AnnieB3 (01-15-2018)