Quote:
Originally Posted by JoClay
His tremors have decreased by about 50%, but he has picked up some mouth and head dyskinesia that he didn't have before. But, since he is still on his regular meds, the programmer says this is not unusual. He has his next appointment in 3 weeks and they will decide if and when his meds can be decreased and by how much. We realize this is a trial and error process and not to expect an overnight result, but it's hard not to get anxious.
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Head and mouth dyskinesias?!? Exactly what I want to avoid by getting DBS. I have had them a few times at day’s end when I hadn’t eaten enough. Distressing and I had blisters in my mouth the next day— so painful. Please give him a hug and advocate strongly for him. Three weeks is too long if he gets blisters IMHO. Keep us posted please. Thank you.