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Old 01-17-2018, 10:46 PM
Alice P Alice P is offline
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Join Date: Aug 2017
Location: USA
Posts: 54
5 yr Member
Alice P Alice P is offline
Junior Member
 
Join Date: Aug 2017
Location: USA
Posts: 54
5 yr Member
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Quote:
Originally Posted by Becca71 View Post
The Ketamine is in a cream. And yes, at first it took a LOT for me to manage to touch my foot. But bear in mind that desensitization is also incredibly important for improvement in the condition. There are articles about it on some of the RSD/CRPS websites. It is through desensitization that I have been able to weight bear on my foot, wear a super fluffy, loose, chenille sock, etc.
At first I could barely apply it, so I only did it very lightly on the worst areas. Then my doc had me get lidocaine cream and apply that first and it helped a lot. You can get that OTC (so even if you can't get the Ketamine, I recommend the lidocaine). Its sold as Anecream 5% (its for hemorrhiods, but that really doesn't matter). Its very lightweight so easy to apply with barely touching. I find it cooling and very lightly relieving.

It is SO important to do things to touch the affected area in just tiny tiny bits with soft things (like cotton balls) for very short periods of time repeatedly every day. Like say, three times each day touch the affected area with a cotton ball for 10 sec. 5 x. After a week, increase it to 10 sec. Do what gets up to the threshold of about to worsen, not what actually flares.
A good PT with experience with CRPS can guide him with desensitization.

We have never heard of desensitization for CRPS but it makes perfect sense. I will do some research on it . It might take some convincing on my part because my husband will NOT let anyone/anything touch his foot/ankle. But I have no doubt he will see the logic in it . I was thinking about getting some lidocaine. I think it comes in a spray as well but I can't remember ( we used it on my mom when she had shingles).

Its REALLY good to hear that you are able to wear a sock, put weight on your foot etc.

Thank you so much for the info.
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BioBased (01-21-2018), ger715 (01-27-2018)