This all must be so scary and stressful. I'm so sorry

I am glad that it seems that you are finally getting the attention and care that you need for you condition now. Will you begin undergoing dialysis soon? That is usually what patients do to clean their blood (when their kidneys can't anymore) while they wait for transplants.

I agree with Kitty...
It is a good idea to have someone come with you when you go to appointments. Could your case manager come with you?

Do you think you can get an appointment with your councilor soon? This situation is a lot to handle alone