Member
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Join Date: Aug 2009
Posts: 642
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Member
Join Date: Aug 2009
Posts: 642
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Sorry you went through that. Sadly, it is normal, and usually happens when the infusion is run too fast. Definitely report the incident, and you will have to be very careful from now on to make sure the rate of infusion goes very slowly. That is easier said than done at times, depending on your infusion nurse.
I did IVIG for about 14 years and then sub-q IG for another 2 or so. The infusion had to go so slowly to avoid the side effects and even when I thought things were perfect, I would sometimes have difficulty. For me, the IG never brought miraculous improvements, either, but I was glad to have the protective qualities on board to prevent infections from colds, flu, etc.
Hope you feel better soon.
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