Hi Becky

I'm Donna and I have a 15 year old that has had his VNS for 2 years.

We still deal with seizures, and he still is on 3 different medicines. He
has a paraprofessional at school, and we have to have someone with
him 24/7 so I can totally relate to what you are talking about.

I don't know what state your in but if you would like someone to talk to.
Email me at dmom3005@yahoo.com and I'll see if I can figure out someway
to help you. I am also a advocate in the state of Indiana, and have resources to help parents in other states if they need it. So if you are
having problems with the schools I might be able to help.

Have you looked into respite care.

Donna