Originally Posted by AnnieB3

Hi, Olle. Welcome to the forum!

Alice hasn't been her for a while. But I believe I can help.

When someone is immunosuppressed, the signs of MG will be reduced or disappear. There are studies, one done by the inventor of the SFEMG (Erik Stalberg), that clearly show that the SFEMG becomes normal while on Mestinon and immunosuppressants.


The studies I found are in book form. I can't find the articles online. You could try to search PubMed. Or you could contact Erik Stalberg and ask him! He might reply!

Any doctor should understand this basic principle. The whole point of suppressing the immune system is for the disease state to be suppressed! Therefore, the signs of that disease (clinical and tests) are equally effected.

I'm sorry for your struggles and that they are now acting as though you're fine. When someone has cancer, has chemo and/or surgery, and the signs of cancer go away, do doctors then say that the patient never had cancer?!!! If someone has pneumonia and take an antibiotic and there are no signs in 2 weeks, does that mean they weren't sick? If someone has seasonal allergies and takes Singulair or Benadryl and the symptoms go away, does that mean they don't have an allergic response any longer?

This is a DANGEROUS way to think. If they take you off of meds and put you on physical therapy, for example, you could go into a MG crisis.

Did you have positive antibodies? How did they diagnose you? And if you didn't have MG, how do they explain suppressing your immune system for months (longer?) and subjecting you to the possibility of cancer and subjecting themselves to the possibility of a lawsuit! They are being rather hypocritical.

Are you symptom-free? If so, your doctors should consider you drug-induced remission. Please, don't worry! Sometimes you just need to talk their language in order for them to stop being, well, just plain ignorant.


Annie