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Old 01-26-2018, 03:30 AM
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Quote:
Originally Posted by Icehouse View Post
The goal is too train other parts of the body\mind to compensate for the neurons I have killed off. He also told me to get back on "thiamine".

The above term is defined as: This condition occurs when neurons in the cerebellum deteriorate and die because of the damaging effects of alcohol. The cerebellum is the part of the brain that controls coordination and balance
Fascinating. To quote myself from a few pages back, guessing what it could be:

Quote:
Well if it's PT it could theoretically work - as the brain may adapt through exercise and learn to slightly change it's "commands" to the muscles based on the information it gets from the (damaged) motor and (intact) sensory nerves. But then I'm assuming quite a few and quite intense sessions, perhaps over a long period. It would literally alter the working of your brain in that department, which is something I know they *can* do. A sort of re-calibration.
I was almost right.

Awesome! I'm supposing they did find a good regimen of PT that helps this occur, and rather more quickly than I thought it could. Of course, if they have you do the PT at home too, on a daily basis, it may speed up the process in a big way.

Difference could be - and maybe it's something you might want to ask, just out of curiosity - that the damage in your case is not so much in the motor nerves (we always think when we hear PN that it's the nerves themselves that are damaged), but mostly in the brain itself. It also could explain why you never felt any pain; your nerves (both motor and sensory) may actually be totally intact, and the PT regimen further "repairs" the damage in the cerebellum by letting other parts of the brain "take over"!

The B1 recommendation is interesting too. I know that in Japan they are very big on that when they start treating alcoholics (even before they develop PN). It may be that they are targeting the brain with that, rather than the nerve endings.

I'm actually starting to believe this could really be your golden ticket - but works specifically in your case. It just shows again that "PN" can have many many forms, and in your specific case there is a "cure". I now even wonder if your specific condition is called neuropathy at all. Instead, the diagnosis may be: "alcoholic cerebellar degeneration". (makes sense)

Whatever the answer to that, the most important thing is that it seems to work! Very happy for you!
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Icehouse (01-26-2018), kiwi33 (01-26-2018), PamelaJune (01-26-2018), SecondChances (01-27-2018)