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Old 02-01-2018, 04:52 PM
Ragtop262 Ragtop262 is offline
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Join Date: Mar 2015
Location: Midwest
Posts: 381
8 yr Member
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
8 yr Member
Default Just Checking In - 3.5 years and counting

Hi everyone, sorry I haven't been on the board much lately, but I do like to at least check in every 6 months or so, to update those I've corresponded with in the past, and to offer some hope for those that are newer to the board.

As some may recall, in summer of 2014 I had a fairly sudden onset of muscle tightness which led to twitching and cramping symptoms over a period of a few weeks. Later, those symptoms faded somewhat but were replaced by fire in my feet and some numb toes. Of course I had all the tests and got no answers. Things stabilized after about 6 months, and then started to get a little better.

At this point things are still going well. The foot burning has moderated somewhat and is now more of an annoyance that a major problem. I still take some gabapentin, but have cut back from 1800 mg/day to 600 mg/day.

I went down to the basement today in bare feet, and thought to myself "this floor feels really cold today". So, it does seem that my numbness may be getting a bit better as well.

So anyway, I know that this disease could turn around and get worse again at any time, but for now I'm glad that things are stable or even slightly improving. I pray that everyone else on this board can find some measure of comfort as well.
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