Quote:
Originally Posted by Tryguy
Hi, I spent a year attempting the Hinz protocol to no avail, and eventually surrendered to the C/L (Sinamet) treatment. However, 3-4 pills of 25/100 per day did little. SO.. I added some left over Mucuna from Hinz with each C/L where I have reached at least a functional state and can play my guitar again after 2-3 years. I still supplement with B6 to help keep the Dyskinesia monster at bay. (I have never had any)
I am still fine tuning and looking to eliminate the C/L and go straight Carbidopa + Mucuna only. Are there are any other PD Warrior renegades out there trying anything like this?
Btw, I am an exerciser, attitude maven, curb walker, and 58 yr old dad of two. More gait dominant, no resting tremor, diagnosed 7 years now.
Thanks in advance!
AB aka Tryguy
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Hi TryGuy,
Perhaps a slight increase with Sinemet instead?
The dyskinesia when it becomes a problem can be fixed with DBS.
Do you see a movement disorder specialist?
If not they're the type of neurologist i've found deliver mostly sound advice.
Unless they've done human drug trials and carried out double blind placebo studies in large reputable teaching hospitals and labs I'd be dubious.
Best wishes