Originally Posted by janieg

Hi Ragtop,

Nice hearing from you. Glad you're holding your own.

I hit the four-year mark in November. I've definitely seen improvement with the worst symptoms, but have a new interesting one. I get "skin rushes" (for lack of a better term) all over. Sometimes they're full-body, but mostly localized, I had ones yesterday that simultaneously were hitting my left thigh and the right side of my head. Just so bizarre.

The biggest problem I have at this point are sporadic bouts with intense cramping in my feet and lower legs. Can't isolate what gets out of whack. It's definitely not just hydration.

My neuro retired, and I saw a new one. She was very sympathetic and thorough, but had no idea. So the adventure continues. I'm continuously trying new things still hoping for the magic bullet.

Hang in there.