Quote:
Originally Posted by dtaijo174
Your experience sounds very similar to mine. Checkout the recent thread, "Doc says no SFN, I don't believe him"
My experience started with mild pain and tons of fasciculations or muscle twitches. One doc suggested SFN and another BCFS or benign cramp fasciculation syndrome.
The symptoms started out mild and intermittent. One day they were there and the next completely normal.However, they progressed rapidly over 6 months. Sometime after, something changed and it got progressively better. However, my pain has stayed the same and my twitches are still present. After continually asking for a skin punch i finally got it and received a positive diagnosis for SFN a few weeks ago.
My advice would be to set up another neuro appointment (you can always cancel) and monitor how things are going. Push for the skin biopsy for peace of mind.
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Hi thanks for the reply...i have just read your story,and your journey is sounding similar to mine,but I don't understand why the Neuro would dismiss small.fibre neuropathy?I choose him on purpose as he specialises in SFN..he listensed to my symptoms and i also did tell him I've been researching on the net and my symptoms do consist but he said NO I will be fine fine,when will I? I'm still.in pain,getting a biopsy on private is 2 much money..so it looks like I will be waiting for months until the hospital sees me!!I still can't believe why this thing has happened,wife is giving birth in the summer and honestly hope I'm not in pain or get worse..i need to find out what he diagnosed me with which I will put up on here for opinions