Quote:
Originally Posted by Shak2388
Hi thanks for the reply...i have just read your story,and your journey is sounding similar to mine,but I don't understand why the Neuro would dismiss small.fibre neuropathy?I choose him on purpose as he specialises in SFN..he listensed to my symptoms and i also did tell him I've been researching on the net and my symptoms do consist but he said NO I will be fine fine,when will I? I'm still.in pain,getting a biopsy on private is 2 much money..so it looks like I will be waiting for months until the hospital sees me!!I still can't believe why this thing has happened,wife is giving birth in the summer and honestly hope I'm not in pain or get worse..i need to find out what he diagnosed me with which I will put up on here for opinions
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I feel your pain. The second neurologist i saw is a SFN specialist and he dismissed my symptoms as well. I trusted him until my toe went numb. Push for the skin biopsy and I pray it comes back negative.
Side note, I also understand your concern about your wife and future child. I have 2 children (1 & 3 years old). My daughter was planned when my doctor told me it was BFS and nothing to worry about... Now with my SFN diagnosis, I worry about how i will take care of them if this progresses. My wife does not make enough to sustain our family. This bothers me more than the disease...
With that said, it might be a good idea to get/increase your disability insurance prior to a skin biopsy. This way you lock in your rates at a low amount, instead of paying a premium or getting rejected post diagnosis.