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Wisest Elder Ever
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Join Date: Jan 2008
Location: Deep South
Posts: 21,576
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Wisest Elder Ever
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
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 Tied, your experience sounds dreadful.
I suppose TN affects everyone differently. Are you taking any medication for it?
My pain is electric shock like zaps. Like someone stuck an electric knife in my eye. I makes me jump. It radiates down my face right beside my nose and onto the top of my lip. Any movement is excruciating.....and forget about talking or smiling.
When this condition first reared it's ugly head I had no idea what was happening. It just came out of nowhere. And the anxiety of not knowing if or when it would stop was the worst part of it. Thanks to a sympathetic Neurologist (I know.....hard to believe) I was prescribed Trileptal and it helped immensely. Now, I will not be without that medication.
Like you, I learned what would set my TN off and I avoided those things (popsicles, anything very hot or very cold). I'd test the waters at first but quickly learned it wasn't worth it and there was no popsicle or hot chocolate worth the pain it would create.
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