Two years later and I'm still measuring my PD.

timeSinceDX.png

The generally improving trend of the period 7.5 to 12 years after diagnosis seems to have gone in reverse in the last 6 months.

In my view, the side by side tap test is a good way to measure short term changes, such as monitoring the immediate effects of a change of drug regimen.

However, regarding the use of the side by side tap test to measure long term changes in PD, I'm not so sure. My subjective view is that my PD has worsened more than these tests suggest. What seems to happen is that a new symptom develops (e.g. drooling), which gets worse for a while, before stabilizing, only to be followed by a yet another new symptom (e.g. dystonia).

You can run these tests or access the data online, just go to my website:

Parkinson's Disease Measurement: PwP, surveys, trials, analysis

John